Ethan Bug's Blog: April 2011

Sunday, April 17, 2011

Ethan's First Angel - Versary

Ethan's First Angel - Versary
by Jackie Graham McFeaters

Today is my first Angel-versary!

Mommy I don't want you to be sad about me

You know that I will always live in your heart

And that means we'll never really be apart

I know you wish I could have stayed with you longer

But I want you to be happy and keep getting stronger

Here in Heaven I have so many important jobs to do

I'm such a good angel because of what I learned from you

My angel job is teaching people to be loving and caring

My job is easy because you taught me all about sharing

God chose you and Daddy to show me these things

And now I carry your love on my angel wings

The reason I didn't need to stay here on Earth very long

Is because I learned very quickly about right and wrong

Sometimes I have to help people to do the right things

I teach them about helping others and the good feeling that brings

That's the reason I want you to keep telling my story

You can help your angel and spread the word for me

You are doing such a good job teaching people to be giving

You'll come to heaven and help me when it's time to stop living

But right now Mommy I want you to be happy and live

I know that you have so much love to give

Daddy and Sissy need you so much and I want you to see

That you need to love them and don't be sad about me

I'm always going to be with you and Daddy and Sissy

When Sissy gives you hugs they are coming from me

I'll always watch over Sissy and be her big brother

And all you have to do Mommy is love her

Some day in Heaven you and I will be together again

And I will live in your heart until then

Please Mommy when you think of me you should smile and not cry

Because I love being an angel and I'm sure you know why

It's okay for you to be sad every once in a while

But just think "WHAT WOULD ETHAN DO" and SMILE!!!!

Saturday, April 9, 2011

1 Year Angel-versary

oh ethan you have been gone physically for 1 year today, to me it feels like a million years. i do have to be thankful for al the family and friends that have been there for me daddy and sissy. yesterday it rained all day, that was comforting to me because i knew you were doing that so many people could jump in puddles for you yesterday and today~~you have taught so many people to love more, to be more patient and to all around be a better person. you have done more in your 2 1/2 years here than most people do in a lifetime and you continue to tech people.
so many of your nurses remembered you today with love~~also your girlfriend kadie and also your buddy jaden who both have battled neuroblastoma with you.
i love you so much and will write to you again soon.
i love you my hero, mommy

What is Neuroblastoma?

Overview
Neuroblastoma is a malignant (cancerous) tumor that develops from nerve tissue. It occurs in infants and children.
Symptoms
The first symptoms are usually fever, a general sick feeling (malaise), and pain. There may also be loss of appetite, weight loss, and diarrhea.
Other symptoms depend on the site of the tumor, and may include:
Bone pain or tenderness (if the cancer spreads to the bones)
Difficulty breathing or a chronic cough (if the cancer spreads to the chest)
Enlarged abdomen (from a large tumor or excess fluid)
Flushed, red skin
Pale skin and bluish color around the eyes
Profuse sweating
Rapid pulse (tachycardia)
Brain and nervous system problems may include:
Inability to empty the bladder
Loss of movement (paralysis) of the hips, legs, or feet (lower extremities)
Problems with balance
Uncontrolled eye movements or leg and feet movements (called opsoclonus-myoconus syndrome, or "dancing eyes and dancing feet")
Treatment
Treatment varies depending on the location of the tumor, how much and where the tumor has spread, and the age of the patient. In certain cases, surgery alone is enough, but often other therapies are needed. Anticancer medications (chemotherapy) may be recommended if the tumor is widespread. Radiation therapy may also be used.
Causes
Neuroblastoma can occur in many areas of the body. It develops from the tissues that form the sympathetic nervous system (the part of the nervous system that controls body functions, such as heart rate and blood pressure, digestion, and levels of certain hormones).
Most neuroblastomas begin in the abdomen in the adrenal gland or next to the spinal cord, or in the chest. They may also start in other areas. Neuroblastomas can spread to the bones (face, skull, pelvis, shoulders, arms, and legs), bone marrow, liver, lymph nodes, skin, and around the eyes (orbits).
The cause of the tumor is unknown. Neuroblastoma is most commonly diagnosed in children before age 5. The disorder occurs in approximately 1 out of 100,000 children and is slightly more common in boys.
In most patients, the neuroblastoma has already spread when it is first diagnosed.
Tests & diagnosis
Signs vary depending on the location of the tumor. Examination of the abdomen with the hands (palpation) may reveal a mass. The liver may be enlarged, if the tumor has spread to the liver. Adrenal gland tumors can cause high blood pressure and a fast heart rate. Lymph nodes may be swollen.
X-ray or imaging tests are done to locate the main (primary) tumor and to see where it has spread. These include:
Bone scan
Bone x-rays
Chest x-ray
CT scan of chest and abdomen
MRI scan of chest and abdomen
Other tests include:
Biopsy of tumor
Bone marrow biopsy
CBC showing anemia or other abnormality
Coagulation studies, erythrocyte sedimentation rate
Hormone tests (blood tests to check levels of hormones such as epinephrine and other catecholamines)
MIBG scan
Urine 24-hour test for catecholamines, homovanillic acid (HVA) and vanillymandelic acid (VMA)
Prognosis
The expected outcome varies. In very young children with neuroblastoma, the tumor may go away on its own, without any treatment, or the tissues of the tumor may mature and develop into a benign (non-cancerous) tumor called a ganglioneuroma, which can be surgically removed. In other cases, the tumor spreads rapidly.
Response to treatment also varies. Treatment is often successful if the cancer has not spread, but if it has been spread, neuroblastoma is much harder to cure. Younger children often do better than older children.
Tumors with certain genetic characteristics may be harder to cure.
Children treated for neuroblastoma may be at risk for getting a second, different cancer in the future.
Complications
Spread (metastasis) of the tumor
Damage and loss of function of involved organ(s)
Kidney failure
Liver failure
Loss of blood cells produced by the bone marrow
Decreased resistance to infection
Other organ system failures

Sunday, April 17, 2011

Ethan's First Angel - Versary

Saturday, April 9, 2011

1 Year Angel-versary

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