Ethan Bug's Blog: January 2012

Thursday, January 26, 2012

boy has this been a tough month~~

oh ethan, this has been by far the toughest month since you have been gone physically. i can not wait to hold you in my arms, to hug and to kiss like we aways did. and next month is our 1st big vacation without you, but i know i need to go on for sarah, she deserves happy moments~~
i found out today on july 29,2012 will be the 46 mommas shave for the brave event. i am so happy to be involved in this event, to raise funds for childhood cancer research and also to bond with other mommas mising their babies and some that still have their babies~~
i hope you know, i go on for sarah but i can not wait to be with you again. you are in my thoughts every moment of every day~~

love you more than chocolate my baby boy, mommy

Friday, January 20, 2012

good evening my sweet baby boy~~

oh sweet ethanbug you have been gone physically for 1 years, 4 months, and 16 days. it seems like we have been physically apart for millions of years. notice how i said "physically" because i know you are here in spirit through the signs i get and through your sissy~~
big news baby boy, i am going to raise funds and shave my head at the end of july with the "46 mommas, shave for the brave event" i am so excited to be doing this in your memory and raising funds for research~~kadies mommy sarah is going to be doing it to right beside me, just like you and kadie are now, side by side. i hope she is not being too hard on you, she is a tough little country girl but she loves you~!!
daddy and sarah are both snoring right now as i sit and have my thoughts of you, my beautiful handsome loving hero!
i love you and will write again soon.
i love you more than chocolate my baby, love, mommy

What is Neuroblastoma?

Overview
Neuroblastoma is a malignant (cancerous) tumor that develops from nerve tissue. It occurs in infants and children.
Symptoms
The first symptoms are usually fever, a general sick feeling (malaise), and pain. There may also be loss of appetite, weight loss, and diarrhea.
Other symptoms depend on the site of the tumor, and may include:
Bone pain or tenderness (if the cancer spreads to the bones)
Difficulty breathing or a chronic cough (if the cancer spreads to the chest)
Enlarged abdomen (from a large tumor or excess fluid)
Flushed, red skin
Pale skin and bluish color around the eyes
Profuse sweating
Rapid pulse (tachycardia)
Brain and nervous system problems may include:
Inability to empty the bladder
Loss of movement (paralysis) of the hips, legs, or feet (lower extremities)
Problems with balance
Uncontrolled eye movements or leg and feet movements (called opsoclonus-myoconus syndrome, or "dancing eyes and dancing feet")
Treatment
Treatment varies depending on the location of the tumor, how much and where the tumor has spread, and the age of the patient. In certain cases, surgery alone is enough, but often other therapies are needed. Anticancer medications (chemotherapy) may be recommended if the tumor is widespread. Radiation therapy may also be used.
Causes
Neuroblastoma can occur in many areas of the body. It develops from the tissues that form the sympathetic nervous system (the part of the nervous system that controls body functions, such as heart rate and blood pressure, digestion, and levels of certain hormones).
Most neuroblastomas begin in the abdomen in the adrenal gland or next to the spinal cord, or in the chest. They may also start in other areas. Neuroblastomas can spread to the bones (face, skull, pelvis, shoulders, arms, and legs), bone marrow, liver, lymph nodes, skin, and around the eyes (orbits).
The cause of the tumor is unknown. Neuroblastoma is most commonly diagnosed in children before age 5. The disorder occurs in approximately 1 out of 100,000 children and is slightly more common in boys.
In most patients, the neuroblastoma has already spread when it is first diagnosed.
Tests & diagnosis
Signs vary depending on the location of the tumor. Examination of the abdomen with the hands (palpation) may reveal a mass. The liver may be enlarged, if the tumor has spread to the liver. Adrenal gland tumors can cause high blood pressure and a fast heart rate. Lymph nodes may be swollen.
X-ray or imaging tests are done to locate the main (primary) tumor and to see where it has spread. These include:
Bone scan
Bone x-rays
Chest x-ray
CT scan of chest and abdomen
MRI scan of chest and abdomen
Other tests include:
Biopsy of tumor
Bone marrow biopsy
CBC showing anemia or other abnormality
Coagulation studies, erythrocyte sedimentation rate
Hormone tests (blood tests to check levels of hormones such as epinephrine and other catecholamines)
MIBG scan
Urine 24-hour test for catecholamines, homovanillic acid (HVA) and vanillymandelic acid (VMA)
Prognosis
The expected outcome varies. In very young children with neuroblastoma, the tumor may go away on its own, without any treatment, or the tissues of the tumor may mature and develop into a benign (non-cancerous) tumor called a ganglioneuroma, which can be surgically removed. In other cases, the tumor spreads rapidly.
Response to treatment also varies. Treatment is often successful if the cancer has not spread, but if it has been spread, neuroblastoma is much harder to cure. Younger children often do better than older children.
Tumors with certain genetic characteristics may be harder to cure.
Children treated for neuroblastoma may be at risk for getting a second, different cancer in the future.
Complications
Spread (metastasis) of the tumor
Damage and loss of function of involved organ(s)
Kidney failure
Liver failure
Loss of blood cells produced by the bone marrow
Decreased resistance to infection
Other organ system failures

Thursday, January 26, 2012

boy has this been a tough month~~

Friday, January 20, 2012

good evening my sweet baby boy~~

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