Ethan Bug's Blog: missing you is so hard!!!!

Thursday, June 17, 2010

missing you is so hard!!!!

hi baby boy, i am sorry i have not been on your blog for a couple of weeks, momma will not let that happen again. Well since then, your birthday was here, you would have been my bubbly beautiful loving 3 year old. we had a wonderful balloon release and happy cake. also many others let balloons go in your memory, all over the place~~as of today we had 4 responses of people finding balloons, one was daddys!!

i have been having alot of hard days my baby boy, tomorrow is another friday. i hate fridays around this time because that is when god took you from me, it will be 11 weeks tomorrow.they are putting our stone in at the cemetary, sisy and i go constantly. she misses you so much, and i hope she never forgets you, i will not let that happen~~

yesterday was mommay's birthday, it was nice but i was missing you butterfly kisses and having happy cake with you!! in july sisy and i are going to see grammy aka "gigi" to sissy in florida. it will be hard making our first trip to see gammy without you, you would have loved the pools, the beach and just loving gammy!!!
well going to go i will be back, always know i am thinking of you constantly~~~

missing you like crazy and more than chocolate, mommy!!

3 comments:

UnknownJune 17, 2010 at 6:40 AM
Aww sweetie it never gets any easier does it.. My heart and prayers for you. How cool that people found your balloons.. and the song on the page makes me cry everytime anyway..
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BNMJune 17, 2010 at 9:06 AM
((hugs)) I know this cant be easy and my heart goes out to you ♥
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TammyJune 17, 2010 at 4:11 PM
Sending you some hugs!
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What is Neuroblastoma?

Overview
Neuroblastoma is a malignant (cancerous) tumor that develops from nerve tissue. It occurs in infants and children.
Symptoms
The first symptoms are usually fever, a general sick feeling (malaise), and pain. There may also be loss of appetite, weight loss, and diarrhea.
Other symptoms depend on the site of the tumor, and may include:
Bone pain or tenderness (if the cancer spreads to the bones)
Difficulty breathing or a chronic cough (if the cancer spreads to the chest)
Enlarged abdomen (from a large tumor or excess fluid)
Flushed, red skin
Pale skin and bluish color around the eyes
Profuse sweating
Rapid pulse (tachycardia)
Brain and nervous system problems may include:
Inability to empty the bladder
Loss of movement (paralysis) of the hips, legs, or feet (lower extremities)
Problems with balance
Uncontrolled eye movements or leg and feet movements (called opsoclonus-myoconus syndrome, or "dancing eyes and dancing feet")
Treatment
Treatment varies depending on the location of the tumor, how much and where the tumor has spread, and the age of the patient. In certain cases, surgery alone is enough, but often other therapies are needed. Anticancer medications (chemotherapy) may be recommended if the tumor is widespread. Radiation therapy may also be used.
Causes
Neuroblastoma can occur in many areas of the body. It develops from the tissues that form the sympathetic nervous system (the part of the nervous system that controls body functions, such as heart rate and blood pressure, digestion, and levels of certain hormones).
Most neuroblastomas begin in the abdomen in the adrenal gland or next to the spinal cord, or in the chest. They may also start in other areas. Neuroblastomas can spread to the bones (face, skull, pelvis, shoulders, arms, and legs), bone marrow, liver, lymph nodes, skin, and around the eyes (orbits).
The cause of the tumor is unknown. Neuroblastoma is most commonly diagnosed in children before age 5. The disorder occurs in approximately 1 out of 100,000 children and is slightly more common in boys.
In most patients, the neuroblastoma has already spread when it is first diagnosed.
Tests & diagnosis
Signs vary depending on the location of the tumor. Examination of the abdomen with the hands (palpation) may reveal a mass. The liver may be enlarged, if the tumor has spread to the liver. Adrenal gland tumors can cause high blood pressure and a fast heart rate. Lymph nodes may be swollen.
X-ray or imaging tests are done to locate the main (primary) tumor and to see where it has spread. These include:
Bone scan
Bone x-rays
Chest x-ray
CT scan of chest and abdomen
MRI scan of chest and abdomen
Other tests include:
Biopsy of tumor
Bone marrow biopsy
CBC showing anemia or other abnormality
Coagulation studies, erythrocyte sedimentation rate
Hormone tests (blood tests to check levels of hormones such as epinephrine and other catecholamines)
MIBG scan
Urine 24-hour test for catecholamines, homovanillic acid (HVA) and vanillymandelic acid (VMA)
Prognosis
The expected outcome varies. In very young children with neuroblastoma, the tumor may go away on its own, without any treatment, or the tissues of the tumor may mature and develop into a benign (non-cancerous) tumor called a ganglioneuroma, which can be surgically removed. In other cases, the tumor spreads rapidly.
Response to treatment also varies. Treatment is often successful if the cancer has not spread, but if it has been spread, neuroblastoma is much harder to cure. Younger children often do better than older children.
Tumors with certain genetic characteristics may be harder to cure.
Children treated for neuroblastoma may be at risk for getting a second, different cancer in the future.
Complications
Spread (metastasis) of the tumor
Damage and loss of function of involved organ(s)
Kidney failure
Liver failure
Loss of blood cells produced by the bone marrow
Decreased resistance to infection
Other organ system failures

Thursday, June 17, 2010

missing you is so hard!!!!

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