Ethan Bug's Blog: do you remember me????

Tuesday, June 22, 2010

do you remember me????

hi ethan it is your momma~~sissy is napping and i thought i would write you a little letter. sitting her looking at the picture i found yesterday, we were at chuck e cheese's you went on the ride that a statue of chuch e cheese is in a car and you sat next to him and it printed a picture. you were smiling and had those so chubby cheeks, i miss them. i miss everything, i hope you remember me, i will never forget my first born baby that god decided he needed to take from me~~i try to talk constantly to sissy about you, the other day she told me she wanted you back and i had to explain to her that you died and you are in heaven watching her every move, so she grabbed your pooh bear and said i love you brudder. i still call her sissy, i cant stop calling her that, i am thankful that we have video of the 2 of you together. last week your stone was finaly put in, it is beautiful but not as beautiful as if you were here with me. fathers day was hard, daddy said to me do you think i was a good daddy to ethan, oh course he was. we still do the what if's but we do not 2nd guess any decitions we made together. sissy is calling me from her nap, i am going to go i will talk to you later.
loving and missing you so much, mommy~~
~~PLEASE WATCH OUT FOR YOUR BEAUTIFUL GIRLFRIEND KATIE SHE IS GETTING HER SCANS DONE TOMORROW TO MAKE SURE THE MONSTER "NEUROBLASTOMA" IS STILL AWAY~~

3 comments:

UnknownJune 22, 2010 at 1:01 PM
Oh sweetie of course he remembers you.. we don't forget in heaven at all. We know who loved us most. Never underestimate the things you did for Ethan. Iknow second guessing is a given, we all do regardless of the outcome. But that baby knew that ya'll loved him with every ounce of strength you couldmuster and did what you could to give him the absolutel best life possible..
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My New Life As MomJune 22, 2010 at 1:08 PM
Oh my goodness. Of course he remembers you. God didn't send him to you for him to forget you. There is a reason he graced your lives and he is up in heaven, watching you, waiting for you. He loves you and is waiting patiently. Helping god with other things. Putting a smile on his face while waiting. Waiting for you.

Oh and of course your husband was a great father to him. One day he'll be able to tell him that.

Blessings and prayers.
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Tracie NallJune 22, 2010 at 1:50 PM
So much love for your family today.
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What is Neuroblastoma?

Overview
Neuroblastoma is a malignant (cancerous) tumor that develops from nerve tissue. It occurs in infants and children.
Symptoms
The first symptoms are usually fever, a general sick feeling (malaise), and pain. There may also be loss of appetite, weight loss, and diarrhea.
Other symptoms depend on the site of the tumor, and may include:
Bone pain or tenderness (if the cancer spreads to the bones)
Difficulty breathing or a chronic cough (if the cancer spreads to the chest)
Enlarged abdomen (from a large tumor or excess fluid)
Flushed, red skin
Pale skin and bluish color around the eyes
Profuse sweating
Rapid pulse (tachycardia)
Brain and nervous system problems may include:
Inability to empty the bladder
Loss of movement (paralysis) of the hips, legs, or feet (lower extremities)
Problems with balance
Uncontrolled eye movements or leg and feet movements (called opsoclonus-myoconus syndrome, or "dancing eyes and dancing feet")
Treatment
Treatment varies depending on the location of the tumor, how much and where the tumor has spread, and the age of the patient. In certain cases, surgery alone is enough, but often other therapies are needed. Anticancer medications (chemotherapy) may be recommended if the tumor is widespread. Radiation therapy may also be used.
Causes
Neuroblastoma can occur in many areas of the body. It develops from the tissues that form the sympathetic nervous system (the part of the nervous system that controls body functions, such as heart rate and blood pressure, digestion, and levels of certain hormones).
Most neuroblastomas begin in the abdomen in the adrenal gland or next to the spinal cord, or in the chest. They may also start in other areas. Neuroblastomas can spread to the bones (face, skull, pelvis, shoulders, arms, and legs), bone marrow, liver, lymph nodes, skin, and around the eyes (orbits).
The cause of the tumor is unknown. Neuroblastoma is most commonly diagnosed in children before age 5. The disorder occurs in approximately 1 out of 100,000 children and is slightly more common in boys.
In most patients, the neuroblastoma has already spread when it is first diagnosed.
Tests & diagnosis
Signs vary depending on the location of the tumor. Examination of the abdomen with the hands (palpation) may reveal a mass. The liver may be enlarged, if the tumor has spread to the liver. Adrenal gland tumors can cause high blood pressure and a fast heart rate. Lymph nodes may be swollen.
X-ray or imaging tests are done to locate the main (primary) tumor and to see where it has spread. These include:
Bone scan
Bone x-rays
Chest x-ray
CT scan of chest and abdomen
MRI scan of chest and abdomen
Other tests include:
Biopsy of tumor
Bone marrow biopsy
CBC showing anemia or other abnormality
Coagulation studies, erythrocyte sedimentation rate
Hormone tests (blood tests to check levels of hormones such as epinephrine and other catecholamines)
MIBG scan
Urine 24-hour test for catecholamines, homovanillic acid (HVA) and vanillymandelic acid (VMA)
Prognosis
The expected outcome varies. In very young children with neuroblastoma, the tumor may go away on its own, without any treatment, or the tissues of the tumor may mature and develop into a benign (non-cancerous) tumor called a ganglioneuroma, which can be surgically removed. In other cases, the tumor spreads rapidly.
Response to treatment also varies. Treatment is often successful if the cancer has not spread, but if it has been spread, neuroblastoma is much harder to cure. Younger children often do better than older children.
Tumors with certain genetic characteristics may be harder to cure.
Children treated for neuroblastoma may be at risk for getting a second, different cancer in the future.
Complications
Spread (metastasis) of the tumor
Damage and loss of function of involved organ(s)
Kidney failure
Liver failure
Loss of blood cells produced by the bone marrow
Decreased resistance to infection
Other organ system failures

Tuesday, June 22, 2010

do you remember me????

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