Ethan Bug's Blog: Don't be mad I have not been here in awhile~~~

Sunday, January 23, 2011

Don't be mad I have not been here in awhile~~~

my sweet handsome loving caring beautiful awesome boy i miss you so much, i think of you every minute of everyday. i can not believe i made it though the holidays, i was so sad but i was happy that you do not have cancer or pain anymore~~my heart will always be broken, it will never be whole again. i went to the cemetary and put your penguin flag up and i took all the snow off our grave, i cried while i did it, looking at your christmas tree and wreath and all the ornaments family and friends decorated it with. you should be with mommy daddy and sissy and betsy too~~
now your sissys birthday is coming, i can not believe she will be "3", that means i would have 2 "3 year olds" that are not twins!! then comes your anniversary of being in heaven then your 4th birthday. i will be celebrating your birthday again, always will~~
we are doing so great things to remember you, we are donating girl scout cookies to your favorite floor at chp (9b) for the patients and their families. so far we have over 100 boxes. also mommy is planning a memorial blood drive and bone marrow screening drive, just lookiing for a good place to have it~~and we are working on your "ethan loney foundation" and we will be donating alot of time and money to heathers haven, they are namimg the acres of woods after you. ETHAN BUGS HUNDRED ACRE WOOD!! they are working on the artwork, i am so proud of this and we will be there to help and volunteer when it does open, and that will be one thing sissy will always be a part off~~
sissy misses you so much, she for a 2 year old is amazing. she realizes that you live far far away and that you can not come back. she holds me when i am sad and she helps me to go on. we are getting ready for her march for babies walk, TEAM SARAH PATRICIA. we will have winnie the pooh wearing a shirt again that says brother on it. then in june we will be doing the relay for life, ETHAN BUG'S ANGELS is our team name. i have been selling 31 products and raising money for the relay for life with all my commission going towards my donations. i am so proud of you and the great little boy you are.
i went to see a spiritual medium and had a wonderful session. she told me about the person you are with in heaven, down to the hair and eyebrows, it is my pappy your great grand pappy, martin. he was in heaven by the time you came along, but i am glad he is loving you and teaching you so much~~
i must go to bed now, sissy goes to her 2 year old preschool tomorrow.
REMEMBER I LOVE YOU EVEN MORE THAN CHOCOLATE~~
AND I LOVE YOU MORE AND MORE EACH DAY~
YOUR MOMMY FOREVER AND EVER!!!!

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What is Neuroblastoma?

Overview
Neuroblastoma is a malignant (cancerous) tumor that develops from nerve tissue. It occurs in infants and children.
Symptoms
The first symptoms are usually fever, a general sick feeling (malaise), and pain. There may also be loss of appetite, weight loss, and diarrhea.
Other symptoms depend on the site of the tumor, and may include:
Bone pain or tenderness (if the cancer spreads to the bones)
Difficulty breathing or a chronic cough (if the cancer spreads to the chest)
Enlarged abdomen (from a large tumor or excess fluid)
Flushed, red skin
Pale skin and bluish color around the eyes
Profuse sweating
Rapid pulse (tachycardia)
Brain and nervous system problems may include:
Inability to empty the bladder
Loss of movement (paralysis) of the hips, legs, or feet (lower extremities)
Problems with balance
Uncontrolled eye movements or leg and feet movements (called opsoclonus-myoconus syndrome, or "dancing eyes and dancing feet")
Treatment
Treatment varies depending on the location of the tumor, how much and where the tumor has spread, and the age of the patient. In certain cases, surgery alone is enough, but often other therapies are needed. Anticancer medications (chemotherapy) may be recommended if the tumor is widespread. Radiation therapy may also be used.
Causes
Neuroblastoma can occur in many areas of the body. It develops from the tissues that form the sympathetic nervous system (the part of the nervous system that controls body functions, such as heart rate and blood pressure, digestion, and levels of certain hormones).
Most neuroblastomas begin in the abdomen in the adrenal gland or next to the spinal cord, or in the chest. They may also start in other areas. Neuroblastomas can spread to the bones (face, skull, pelvis, shoulders, arms, and legs), bone marrow, liver, lymph nodes, skin, and around the eyes (orbits).
The cause of the tumor is unknown. Neuroblastoma is most commonly diagnosed in children before age 5. The disorder occurs in approximately 1 out of 100,000 children and is slightly more common in boys.
In most patients, the neuroblastoma has already spread when it is first diagnosed.
Tests & diagnosis
Signs vary depending on the location of the tumor. Examination of the abdomen with the hands (palpation) may reveal a mass. The liver may be enlarged, if the tumor has spread to the liver. Adrenal gland tumors can cause high blood pressure and a fast heart rate. Lymph nodes may be swollen.
X-ray or imaging tests are done to locate the main (primary) tumor and to see where it has spread. These include:
Bone scan
Bone x-rays
Chest x-ray
CT scan of chest and abdomen
MRI scan of chest and abdomen
Other tests include:
Biopsy of tumor
Bone marrow biopsy
CBC showing anemia or other abnormality
Coagulation studies, erythrocyte sedimentation rate
Hormone tests (blood tests to check levels of hormones such as epinephrine and other catecholamines)
MIBG scan
Urine 24-hour test for catecholamines, homovanillic acid (HVA) and vanillymandelic acid (VMA)
Prognosis
The expected outcome varies. In very young children with neuroblastoma, the tumor may go away on its own, without any treatment, or the tissues of the tumor may mature and develop into a benign (non-cancerous) tumor called a ganglioneuroma, which can be surgically removed. In other cases, the tumor spreads rapidly.
Response to treatment also varies. Treatment is often successful if the cancer has not spread, but if it has been spread, neuroblastoma is much harder to cure. Younger children often do better than older children.
Tumors with certain genetic characteristics may be harder to cure.
Children treated for neuroblastoma may be at risk for getting a second, different cancer in the future.
Complications
Spread (metastasis) of the tumor
Damage and loss of function of involved organ(s)
Kidney failure
Liver failure
Loss of blood cells produced by the bone marrow
Decreased resistance to infection
Other organ system failures

Sunday, January 23, 2011

Don't be mad I have not been here in awhile~~~

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