Ethan Bug's Blog: mising you badly ethan bug~~~~~

Wednesday, April 28, 2010

mising you badly ethan bug~~~~~

Ethan hope you like the new pooh balloon i brought you today, also the grass is growing, also my heart and hands are longing for you. sissy came today for the first time, i explained how you were in the ground out of pain and no more cancer aka yuckies. she said so cute he brother blankie, i just looked at her, she said brother cold blankie. i just started to cry, whe ran to me and said hold like you always did and told me to stop and brushed my tears away. then this evening we were out towards the cemetary again so i asked daddy if he would stop, he said ok. see it was daddys first time coming since the funeral, he said the angel, little stone, balloon and blue pinwheel looked good. we cried together and both agreed it is not fair that we have to go see you , our baby boy, at the cemetary, you should be with us playing and loving life~~~

the last week has been so busy, we went to a pens game and were treated to dinner and tickets, the game lasted 6 periods. we did not win but i felt your presence their. i would look to where we sat on valentines day for the hockey game and cry, we had such a good time.
then saturday we still had the prom, we celebrated you beautiful life. there was laughter but there was also tears. in some pictures there is a circle that someone says means a spirit is there. well in one of the pics with me you must have been there on my chest, also in one with uncle joey there is a circle on his leg. i felt your presence~~~

today grammy went home , she had been here for awhile. she has been helping mommy get through this, she will be back to see us in june~~~sarah now calls her gigi, sarah keeps us all going these days. without her making us laugh and cry we do not know what we would do. we still call her sissy alot especially me. she talks to the pictures of you and the ones of you and her, she always grabs the phone and starts taking to brother~~she loves you so much, and i will make sure she never ever forgets you!!!

i love you so much baby boy,
even more than chocolate~~~

you mommy always and forever

~~mommy added a family picture and a picture of your beautiful sissy~~

2 comments:

supahmommy- somethin's wrong with that girlMay 15, 2010 at 9:50 PM
i bet she's talking to him
i bet he talks to her kelly

xoxooxooxooxooxoxooxoxoxo a million times.
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Michelle PixieMay 18, 2010 at 11:18 AM
My heart is broken for you. My daughter was diagnosed with neuroblastoma 2 weeks ago. I can't give you much today through my tears but I am sending my love. XOXOXO
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What is Neuroblastoma?

Overview
Neuroblastoma is a malignant (cancerous) tumor that develops from nerve tissue. It occurs in infants and children.
Symptoms
The first symptoms are usually fever, a general sick feeling (malaise), and pain. There may also be loss of appetite, weight loss, and diarrhea.
Other symptoms depend on the site of the tumor, and may include:
Bone pain or tenderness (if the cancer spreads to the bones)
Difficulty breathing or a chronic cough (if the cancer spreads to the chest)
Enlarged abdomen (from a large tumor or excess fluid)
Flushed, red skin
Pale skin and bluish color around the eyes
Profuse sweating
Rapid pulse (tachycardia)
Brain and nervous system problems may include:
Inability to empty the bladder
Loss of movement (paralysis) of the hips, legs, or feet (lower extremities)
Problems with balance
Uncontrolled eye movements or leg and feet movements (called opsoclonus-myoconus syndrome, or "dancing eyes and dancing feet")
Treatment
Treatment varies depending on the location of the tumor, how much and where the tumor has spread, and the age of the patient. In certain cases, surgery alone is enough, but often other therapies are needed. Anticancer medications (chemotherapy) may be recommended if the tumor is widespread. Radiation therapy may also be used.
Causes
Neuroblastoma can occur in many areas of the body. It develops from the tissues that form the sympathetic nervous system (the part of the nervous system that controls body functions, such as heart rate and blood pressure, digestion, and levels of certain hormones).
Most neuroblastomas begin in the abdomen in the adrenal gland or next to the spinal cord, or in the chest. They may also start in other areas. Neuroblastomas can spread to the bones (face, skull, pelvis, shoulders, arms, and legs), bone marrow, liver, lymph nodes, skin, and around the eyes (orbits).
The cause of the tumor is unknown. Neuroblastoma is most commonly diagnosed in children before age 5. The disorder occurs in approximately 1 out of 100,000 children and is slightly more common in boys.
In most patients, the neuroblastoma has already spread when it is first diagnosed.
Tests & diagnosis
Signs vary depending on the location of the tumor. Examination of the abdomen with the hands (palpation) may reveal a mass. The liver may be enlarged, if the tumor has spread to the liver. Adrenal gland tumors can cause high blood pressure and a fast heart rate. Lymph nodes may be swollen.
X-ray or imaging tests are done to locate the main (primary) tumor and to see where it has spread. These include:
Bone scan
Bone x-rays
Chest x-ray
CT scan of chest and abdomen
MRI scan of chest and abdomen
Other tests include:
Biopsy of tumor
Bone marrow biopsy
CBC showing anemia or other abnormality
Coagulation studies, erythrocyte sedimentation rate
Hormone tests (blood tests to check levels of hormones such as epinephrine and other catecholamines)
MIBG scan
Urine 24-hour test for catecholamines, homovanillic acid (HVA) and vanillymandelic acid (VMA)
Prognosis
The expected outcome varies. In very young children with neuroblastoma, the tumor may go away on its own, without any treatment, or the tissues of the tumor may mature and develop into a benign (non-cancerous) tumor called a ganglioneuroma, which can be surgically removed. In other cases, the tumor spreads rapidly.
Response to treatment also varies. Treatment is often successful if the cancer has not spread, but if it has been spread, neuroblastoma is much harder to cure. Younger children often do better than older children.
Tumors with certain genetic characteristics may be harder to cure.
Children treated for neuroblastoma may be at risk for getting a second, different cancer in the future.
Complications
Spread (metastasis) of the tumor
Damage and loss of function of involved organ(s)
Kidney failure
Liver failure
Loss of blood cells produced by the bone marrow
Decreased resistance to infection
Other organ system failures

Wednesday, April 28, 2010

mising you badly ethan bug~~~~~

2 comments:

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